Wednesday, May 12, 2010

Fibromyalgia Awareness Day

So, today is May 12th, Fibromyalgia Awareness Day. (And as a sidenote, I'm annoyed that I just had to add fibromyalgia to my computer's dictionary.)

I'm not doing much for awareness this year. I have my awareness t-shirt on, but I'm not really leaving the house today. I have no real need to. Last year, I cut up ribbons and made purple ribbons and passed them out to various places. Could of done that this year, but quite frankly, I just don't have the energy.

Ahhh fibro. What to say about it? What to say about a disease that has literally taken my life away? A disease that has made me feel much older then I am? A disease that has changed everything I've ever known?

It has completely and absolutely changed everything for me. I'm 21 years old, and most days I feel like I am at least 80. I have a hard time going out or doing fun things that I used to do, my body just can't handle it. I'm in constant pain, worse pain then I could have ever even imagined before it, and am so exhausted, no matter how much or how little I sleep. My life is not my own anymore, it has been taken over by some kind of horrible monster. A monster who has taken my life away, and left me with this, which sometimes I can't even call a life. Most days it just doesn't feel like it.

But I'm not gonna give up. I can do this. There is hope. I must remember that. Someday, things will get better. Right?

#Fibromyalgia Awareness Day 2010

1 comment:

  1. I soooo understand! Today is another one of my sick at home days and I have so much I want to do, but can't. It's cruel.

    I'm looking at my "I will have better days" magnet and trying to believe, right along with you. It must be true, or I wouldn't have made it. For now.. blah. Hope you're doing okay today.