Friday, April 1, 2011

There's Always More.

Well, I've been having more issues, but really are we surprised here?

I ended up having to go to FirstCare the other day because I was quite sick. I was dizzy, lightheaded, nauseous, unsteady, weak, felt dehydrated, etc. The doctor first thought I had developed diabetes, but my blood sugar was in normal range, so they then decided it must be side effects from the trazadone, since it had only been a week since I started. So on their instruction, I stopped the trazadone that night. Since it didn't really help with my sleep anyways, it wasn't that big of a deal. I felt better the day after, but now I'm starting to feel like that again. I have no idea what is wrong with me this time. And to be quite honest, I don't think anyone else does either. Back to my regular dr I will have to go at some point, oh boy.

Also at this last appointment, the doctor discovered that I had a heart murmur. He obviously must not of thought that it was anything to be overly concerned about, because all he told me to do was talk to my regular dr about it. But still, seriously, another thing wrong with me? *sigh*

Thursday, March 31, 2011

Not Quite As Bad As I Thought

So my doctor appointment didn't go quite as bad as I thought, though it still wasn't great by any long stretch of the imagination. I told him that I was not ok with the thought of weight loss surgery, and that I would rather try to lose the weight on my own. He didn't seem too pleased, but he agreed. We have a 6 month goal, and I need to try to get to a certain number by then. If I haven't, he wants me to reconsider the surgery. I told him I would, but I still don't think I'll ever go with it.

So I'm gonna try doing my DDR workouts again. I love that they have the workout mode, because it shows progress that I'm making, plus it's not as boring as most exercising can be. I'm still not excited though, because last time I tried this it made me feel so crappy. But I'm gonna try to start out very slowly and slowly build up.

I still didn't get my referral to the rheumy though. But he didn't necessarily say no. What happened was that he didn't even give me the chance. Once we discussed the weight thing, he pretty much assumed the appointment was over and left. But, his receptionist came up with the idea that I should call the rheumy's office and have them send the paperwork down to the dr. So I did just that. Not sure if it's gonna do any good yet, but we'll see.

Keep your fingers crossed for me!

Tuesday, March 22, 2011

Nervousness

My next appointment with my regular doctor is tomorrow. I'm not usually nervous about my appointments, but this one I am.

At my last appointment, I asked him for a referral to a rheumatologist because my fibro is not even close to under control. My fatigue is ridiculous, not much of anything helps me sleep, and I'm constantly in pain. I have to do something to try and feel better, as much as I can. He basically flat-out refused and just told me I needed to have weight loss surgery, and that would cure about 90% of my fibro issues. This is complete bullshit! There are people who are very skinny that still have fibro, and besides, I've been losing weight slowly on my own anyways, and that's the healthier way to do it. This has frustrated me to no end.

It made me think that I should find a new doctor, which I have been trying to do. But, different factors, mostly my insurance, is making it incredibly difficult. Only certain doctors are covered, plus I'd have to switch to the new doctor right away, before I even got to talk to them. That makes me completely uncomfortable. What if a new doctor would be just as bad or worse? And all my referrals would be missed up, my scripts would be messed up, etc. So basically my insurance is just making a difficult situation even more difficult.

So tomorrow is my appointment with him. I am going to tell him that I am not doing the weight loss surgery. I've heard enough about it to scare me. And apparently you can't take your meds for a while after? No way. I refuse. I'd never function then. I'd have migraines 24/7, my trigeminal neuralgia would flare constantly, my anxiety level would be insane, I'd have so much pain, and would never sleep. No, I absolutely refuse. I don't know what he'll say or do after I tell him this. I want to ask again for the referral, but I don't know how to go about it. I don't know to convince him. *sigh*

Monday, March 14, 2011

Update.

So, I'm gonna try to do better at writing in this blog, let's see how it goes.

Physical therapy is going well. Scott is so knowledgeable and so great. He knows what he is doing, and actually takes the time to explain things. Not only that, he understands fibro, and has actually done a lot of research on it. It's very nice to have someone who understands. I told him that I wish he was a doctor so he could treat my fibro, lol. He's doing great work on my knee as well, I can tell a difference already.

Speaking of my knee, I am so annoyed at the orthopedic surgeon who I have been seeing for my knee. At my last appointment with him, he had told me that it was just bursitis, gave me a cortisone shot, and sent me to PT. Apparently, there is also another issue. My kneecap is out of alignment, meaning that when I bend and straighten my knee, it basically grinds against cartilage that it's not supposed to, hence the pain. The ortho wrote that it in the notes to Scott, but never told me. It annoys me to no end that he didn't tell me everything. Believe me, he's gonna hear about it at my next appointment with him.

I'm also thinking about trying to doctor search for a new primary care doctor, but with my insurance and everything else, it's way more complicated then it should be.

I guess that's about it for now, hope everyone is doing well!

Thursday, February 17, 2011

Trying To Be Normal

I've been trying to be "normal" lately, as in, doing all the things that other people can do. Dan and I have been doing some crazy cleaning because my mom is coming to visit. It's so exhausting. I've been way over-doing it lately, and seem to be in a flare most of the time. But what am I to do? Things have to get done whether I can do them or not. It doesn't matter. Dan can't do it all himself either. He has joint issues so he's in pain a lot too. We just have to do it, push ourselves, and end up making ourselves worse. It's my attempt at being normal, and I'm failing drastically.

In other news, I have been shaking a lot lately, like my fingers are shaking. I don't know what's up with that. Yesterday it was so bad that I actually felt sick. I ended up eating chocolate and drinking gatorade. I wasn't sure if it was low blood sugar or dehydration, so I tried them both. One or the other, or both, worked. My guess would be dehydration, because that happens to me a lot, plus I've never had trouble with blood sugar. So idk.

I'm back in PT for my knee. I'm seeing a new therapist because the last one was horrible and didn't even believe in fibro. This one believes in it and has experience in it, so I think it'll help. He wants to try this thing called "Instrument Assisted Soft Tissue Mobilization" because my tissue is all stuck and whatnot. Sure, I don't care at this point, just make me better lol.

Ok, I guess that's it for now. Sorry it's been so long since an update, I'll try to do better.

Monday, January 24, 2011

"How To Be Sick" - Review and Quotes

I just finished reading "How To Be Sick" by Toni Bernhard. This book is a wonderful inspirational book for those of us who are chronically ill. It is based on a lot of Buddhist beliefs but even if you are not Buddhist it can still work for you. It applies to all of us. There are wonderful tips to help get us through this new life of our's. I highly recommend this book to anyone who is chronically ill. I'm gonna leave this with a few quotes from the book that I found especially inspiring.

"You know this is the way it is. You were born and are subject to change, disease, and ultimately death. It happens differently for each person. This is one of the way it's happening to you."

"Without the bitterest cold that penetrates to the very bone, how can plum blossoms send forth their fragrances all over the universe?"

"I work on treating thoughts and moods as wind, blowing into the mind and blowing out. We can't control what thoughts arise in the mind (Telling yourself not to think about whether you'll feel well enough to join the family for dinner is almost a guarantee that it's exactly what you will think about!) And moods are as uncontrollable as thoughts. Blue moods arise uninvited, as does fear or anxiety. By working with this wind metaphor, I can hold painful thoughts and blue moods more lightly, knowing they'll blow on through soon - after all, that's what they do."

"The very activities that bring us the greatest joy are also the activities that make our condition worse. This was a bitter pill for me to swallow; it still is sometimes."

"Just as we condition our bodies in different ways through exercise or lack of it, so we also condition our minds. Every mind state, thought, or emotion we experience repeatedly becomes stronger and more habituated. Who we are as personalities is a collection of all the tendencies of mind that have developed, the particular energy configuration we have cultivated."

"May I be peaceful. May I have ease of well-being. May I reach the end of suffering.....and be free."

"If someone curses us and we have no feelings of self the incident ends with the spoken words, and we do not suffer. If unpleasant feelings arise, we should let them stop there, realizing that the feelings are not us....if we do not stand up to the line of fire, we do not get shot, if there is no one to receive it, the letter is sent back."

"When people say, "Ajahn, let's go for a beautiful walk," fine I'll go. If they don't ask, that's fine too. I don't expect a walk to be any more satisfying than sitting alone. It could be hot or windy out there. If people bring me delicious food, great. If they don't, great. I need to diet anyway. If I'm feeling good, that's okay. If I'm sick, that's okay too. It's a great excuse to lie down."

"In mind, I understand that the essence of equanimity is accepting life as it comes to us without blaming anything or anyone - including ourselves."

"If you let go a little, you will have a little peace. If you let go a lot, you will have a lot of peace. If you let go completely, you will know complete peace and freedom. Your struggles with the world will have come to an end."

"Thoughts are just there, like the air around us. They arise but are arbitrary and not reliable. Most of them are just rubbish, but we believe them anyway."

"Language...has created the word "loneliness" to express the pain of being alone. And it has created the word "solitude" to express the glory of being alone."

"If you're suffering due to being alone so much, it might help to recognize that being alone in and of itself is not necessarily a negative experience. It's a neutral state - to which we add the desire for things to be other than they are (for example, to have company)."

"Lonely is a funny thing. It's almost like another person. After a while it will keep you company if you let it."

"In sickness or in health, my heartfelt wish is that you be peaceful, have ease of well-being, reach the end of suffering, and be free."


Tuesday, January 4, 2011

A Few Cruise Pictures

We got back from our cruise a few days ago...it was an awesome time! Florida and the Bahamas were great, and so was the ship in general. Warmer weather was nice too! I just thought I'd share a few of my many pictures with you all. :)

The pools and hot tubs on board the ship.

Dan and I at dinner one evening.

I absolutely love palm trees.

Look at how pretty and blue that water is!

Our ship - Norwegian Gem

Dan and I lounging at the beach in the Bahamas.

Beautiful sunset in the Bahamas.

A chocolate Norwegian Gem at the Chocoholic Buffet

The dolphin that I just had to buy - I love dolphins!

Dan & I on NYE...don't know why he has a funny face lol.

Like I said, that's just a few of my many pictures, if you'd like to see more, visit my facebook photo album. http://www.facebook.com/sarahbear9708