My next appointment with my regular doctor is tomorrow. I'm not usually nervous about my appointments, but this one I am.
At my last appointment, I asked him for a referral to a rheumatologist because my fibro is not even close to under control. My fatigue is ridiculous, not much of anything helps me sleep, and I'm constantly in pain. I have to do something to try and feel better, as much as I can. He basically flat-out refused and just told me I needed to have weight loss surgery, and that would cure about 90% of my fibro issues. This is complete bullshit! There are people who are very skinny that still have fibro, and besides, I've been losing weight slowly on my own anyways, and that's the healthier way to do it. This has frustrated me to no end.
It made me think that I should find a new doctor, which I have been trying to do. But, different factors, mostly my insurance, is making it incredibly difficult. Only certain doctors are covered, plus I'd have to switch to the new doctor right away, before I even got to talk to them. That makes me completely uncomfortable. What if a new doctor would be just as bad or worse? And all my referrals would be missed up, my scripts would be messed up, etc. So basically my insurance is just making a difficult situation even more difficult.
So tomorrow is my appointment with him. I am going to tell him that I am not doing the weight loss surgery. I've heard enough about it to scare me. And apparently you can't take your meds for a while after? No way. I refuse. I'd never function then. I'd have migraines 24/7, my trigeminal neuralgia would flare constantly, my anxiety level would be insane, I'd have so much pain, and would never sleep. No, I absolutely refuse. I don't know what he'll say or do after I tell him this. I want to ask again for the referral, but I don't know how to go about it. I don't know to convince him. *sigh*
Showing posts with label insomnia. Show all posts
Showing posts with label insomnia. Show all posts
Tuesday, March 22, 2011
Saturday, July 10, 2010
30 Things About My Invisible Illness You May Not Know
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is:
Fibromyalgia, Chronic Fatigue Syndrome, Asthma, Migraines, Trigeminal Neuralgia, Hypothyroidism, TMJ, Anxiety.
2. I was diagnosed with it in the year:
Migraines 2004, Anxiety 2005, Chronic Fatigue 2007, Fibromyalgia 2008, Trigeminal Neuralgia 2009, Asthma 2009, TMJ 2010, Hypothyroidism 2010.
3. But I had symptoms since:
Some of them for as long as I can remember. I can't remember them all now though.
4. The biggest adjustment I’ve had to make is:
not being able to go out and do things I used to be able, not being able to do the things my friends do, etc.
5. Most people assume:
that it's all in my head, that i'm making it up, that it's not real, etc.
6. The hardest part about mornings are:
Waking up and actually staying awake, getting out of bed, getting ready for the day.
7. My favorite medical TV show is:
Grey's Anatomy and House.
8. A gadget I couldn’t live without is:
My blackberry.
9. The hardest part about nights are:
not being able to sleep, being in pain.
10. Each day I take __ pills & vitamins. (No comments, please)
I take 11 different prescription meds.
11. Regarding alternative treatments I:
go to acupuncture and the chiropractor when I can afford it, I also love reiki but can never afford it.
12. If I had to choose between an invisible illness or visible I would choose:
I'm not sure.
13. Regarding working and career:
I've tried and failed. Looking for something easier on my body.
14. People would be surprised to know:
That I DO NOT like having to rely on other people for things.
15. The hardest thing to accept about my new reality has been:
that it's not going to go away. That this is something I have to accept and live with for the rest of my life. That life is never going to be the same again.
16. Something I never thought I could do with my illness that I did was:
still have at least a bit of a life.
17. The commercials about my illness:
makes me so mad. They act like this medicine cures it and then you'll be fine. WRONG!
18. Something I really miss doing since I was diagnosed is:
going out and doing something with my friends or whoever. I can barely do it now, and when I do, I sure pay for it!
19. It was really hard to have to give up:
my life. Or at least the way it was.
20. A new hobby I have taken up since my diagnosis is:
talking more to my friends and family. Not really a hobby, but its true.
21. If I could have one day of feeling normal again I would:
Hang out with friends and family and have a BLAST!
22. My illness has taught me:
to live life to the fullest, treasure every moment, and help others the best you can. Sometimes all someone needs is a helping hand.
23. Want to know a secret? One thing people say that gets under my skin is:
You just have to (insert something crazy). It's all in your head. (Insert something else here) will cure it.
24. But I love it when people:
when believe I am sick, and treat me that way.
25. My favorite motto, scripture, quote that gets me through tough times is:
I don't know, I have a few.
26. When someone is diagnosed I’d like to tell them:
to do lots of research because doctors DO NOT know it all. And find help and support, it's what will get you through this.
27. Something that has surprised me about living with an illness is:
how hard it is, and yet how it's changed me. And how I've made some amazing friends through the ordeal
28. The nicest thing someone did for me when I wasn’t feeling well was:
just believe me, know I'm not making it up, and helping me in any way possible.
29. I’m involved with Invisible Illness Week because:
I want people to understand that just because someone doesn't look sick, it doesn't mean that they aren't!
30. The fact that you read this list makes me feel:
really good. I hope you understand better now. Thanks.
1. The illness I live with is:
Fibromyalgia, Chronic Fatigue Syndrome, Asthma, Migraines, Trigeminal Neuralgia, Hypothyroidism, TMJ, Anxiety.
2. I was diagnosed with it in the year:
Migraines 2004, Anxiety 2005, Chronic Fatigue 2007, Fibromyalgia 2008, Trigeminal Neuralgia 2009, Asthma 2009, TMJ 2010, Hypothyroidism 2010.
3. But I had symptoms since:
Some of them for as long as I can remember. I can't remember them all now though.
4. The biggest adjustment I’ve had to make is:
not being able to go out and do things I used to be able, not being able to do the things my friends do, etc.
5. Most people assume:
that it's all in my head, that i'm making it up, that it's not real, etc.
6. The hardest part about mornings are:
Waking up and actually staying awake, getting out of bed, getting ready for the day.
7. My favorite medical TV show is:
Grey's Anatomy and House.
8. A gadget I couldn’t live without is:
My blackberry.
9. The hardest part about nights are:
not being able to sleep, being in pain.
10. Each day I take __ pills & vitamins. (No comments, please)
I take 11 different prescription meds.
11. Regarding alternative treatments I:
go to acupuncture and the chiropractor when I can afford it, I also love reiki but can never afford it.
12. If I had to choose between an invisible illness or visible I would choose:
I'm not sure.
13. Regarding working and career:
I've tried and failed. Looking for something easier on my body.
14. People would be surprised to know:
That I DO NOT like having to rely on other people for things.
15. The hardest thing to accept about my new reality has been:
that it's not going to go away. That this is something I have to accept and live with for the rest of my life. That life is never going to be the same again.
16. Something I never thought I could do with my illness that I did was:
still have at least a bit of a life.
17. The commercials about my illness:
makes me so mad. They act like this medicine cures it and then you'll be fine. WRONG!
18. Something I really miss doing since I was diagnosed is:
going out and doing something with my friends or whoever. I can barely do it now, and when I do, I sure pay for it!
19. It was really hard to have to give up:
my life. Or at least the way it was.
20. A new hobby I have taken up since my diagnosis is:
talking more to my friends and family. Not really a hobby, but its true.
21. If I could have one day of feeling normal again I would:
Hang out with friends and family and have a BLAST!
22. My illness has taught me:
to live life to the fullest, treasure every moment, and help others the best you can. Sometimes all someone needs is a helping hand.
23. Want to know a secret? One thing people say that gets under my skin is:
You just have to (insert something crazy). It's all in your head. (Insert something else here) will cure it.
24. But I love it when people:
when believe I am sick, and treat me that way.
25. My favorite motto, scripture, quote that gets me through tough times is:
I don't know, I have a few.
26. When someone is diagnosed I’d like to tell them:
to do lots of research because doctors DO NOT know it all. And find help and support, it's what will get you through this.
27. Something that has surprised me about living with an illness is:
how hard it is, and yet how it's changed me. And how I've made some amazing friends through the ordeal
28. The nicest thing someone did for me when I wasn’t feeling well was:
just believe me, know I'm not making it up, and helping me in any way possible.
29. I’m involved with Invisible Illness Week because:
I want people to understand that just because someone doesn't look sick, it doesn't mean that they aren't!
30. The fact that you read this list makes me feel:
really good. I hope you understand better now. Thanks.
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